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  • The following organizations, listed alphabetically, have submitted their contact information in support of the mission of National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM).  Add Your Organization

  • Beyond simple verification of tax-exempt status, Guidestar provides in-depth information about more than 1.8 million charities.  Learn more about the leadership, programs, income and expenditures of each organization.
Participating Organizations
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PO Box 751112
Las Vegas, NV 89136-1112
Toll-free:  (888) 486-1209
Phone:  (702) 769-9264
Fax:  (702) 341-5351
Apert International
Post Office Box 2571
Columbia, SC 29202
Phone:  (803) 732-2372

Cleft Palate Foundation (CPF)
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
Phone: 1-800-24-CLEFT
Dylan's Smile
533 Turnberry Drive
Norwalk, IA  50211
Phone:  (515) 306-2085
The National Craniofacial Association
P. O. Box 11082
Chattanooga, TN 37401
Phone:  (800) 332-2373
Michigan Cleft Network (MiCleft)
Toll Free:  (888) MICLEFT
Phone:  (313) 590-6000
AmeriFace serves as coordinator for the Alliance of NCCAPM Member Organizations and related events.
AmeriFace provides information and emotional support to individuals with facial differences and their families and increase public understanding through awareness programs and education, supporting individuals whose facial differences are present at birth, as well as those who have acquired facial differences as a result of illness, disease or trauma, such as stroke, cancer, accident and burns.
Apert International provides education and information to the general public about Apert Syndrome, and provides direct financial and emotional assistance, based on need, to families affected by Apert Syndrome.
The mission of Cleft Palate Foundation is to enhance the quality of life for individuals affected by cleft lip and palate and other craniofacial birth defects.

The mission of Dylan's Smile is to instill hope and foster pride in any family of a child with a facial birth defect. Our goal is to initiate and provide resources for supportive relationships, while building confidence through camaraderie.
Guidestar Non-Profit Report for
Freeman-Sheldon Research Group
The mission of the Freeman-Sheldon Research Group, Inc. (FSRG) is to provide a Judeo-Christian faith-based setting (1) to improve the quality of life of individuals with Freeman-Sheldon (FSS), Sheldon-Hall syndromes (SHS), and related entities by furthering research, clinical care, advocacy, and education for families, professionals, and the wider lay community.
FACES: The National Craniofacial Association is a non-profit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries, or disease.
Michigan Cleft Network is dedicated to enriching lives affected by cleft lip and palate and other facial differences.
Pierre Robin Network
3604 Biscayne
Quincy, IL 62305
The mission of the Pierre Robin Network is to network families and individuals with PRS and provide information to anyone who has an interest.  Parents and caregivers do not need to feel alone
NC Face to Face
Milli Davis, Facilitator

Guidestar Non-Profit Report for NC Face to Face
NC Face to Face is affiliated with AmeriFace.
Moebius Syndrome Foundation
PO Box 147
Pilot Grove, MO 65276
Phone:  (660) 834-3406
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
International Craniofacial Institute
Cleft Lip and Palate Treatment Center
Medical City Dallas Hospital
7777 Forest Lane, Suite C-717
Dallas, TX 75230
Toll Free:  (800) 344-4068
Guidestar Non-Profit Report for
International Craniofacial Institute
The goal of the International Craniofacial Institute is for every patient to leave smiling.  Whether you or your child has inherited or acquired a craniofacial anomaly, we are dedicated to finding the best  possible solution to fit your needs. No matter how difficult or how rare,  we will do everything we can to help.  Because at the International Craniofacial Institute, your family is our family.
Craniosynostosis and Positional Plagiocephaly Support (CAPPS) is dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly.  Our goals include raising awareness with the general public, doctors, health care organizations, parent's and loved ones.
UCSF Center for
Craniofacial Anomalies
513 Parnassus Avenue, S-747
San Francisco, CA 94143
Phone:  (415) 476-2271
Fax:  (415) 476-9513

Guidestar Non-Profit Report for
UCSF Center for Craniofacial Anomalies
The UCSF Center for Craniofacial Anomalies treats all types of conditions affecting the face, head and neck, whether they were present at birth or acquired from a trauma or tumor. The most common conditions include cleft lip, cleft palate and craniosynostosis syndromes, which involve the early fusing of one or more of the bones in the skull and face during fetal development.
CHARGE Syndrome Foundation
141 Middle Neck Road
Sands Point, NY 11050
Toll-free:  (800) 442-7604

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
International 22q11.2 Deletion
Syndrome Foundation
PO Box 424
Matawan, NJ 07747
Toll-free:  (877) 739-1849
The mission of the International 22q11.2 Deletion Syndrome Foundation is to improve the quality of life for individuals affected by the 22q11.2 deletion syndrome through family and professional partnerships.

Smile Train
41 Madison Ave., 28th Floor
New York, NY 10010
Phone:  (800) 932-9541
The mission of Smile Train is to provide a child born with a cleft the same opportunities in life as a child born without. We provide free cleft surgery to hundreds of thousands of poor children in developing countries, train doctors and medical professionals in over 75 countries, and treat the “whole child” with comprehensive, total rehabilitative care including speech therapy, general dentistry and orthodontics.
Smile Oregon
7327 S.W. Barnes Rd., #219
Portland, OR 97225

The mission of Smile Oregon is to make it possible for every child with a cleft or craniofacial condition living in Oregon to obtain the coordinated care they deserve regardless of their ability to pay. At the same time, Smile Oregon will serve as a centralized source of support and information for patients and families affected by cleft and craniofacial conditions.
Jacksonville Cleft Lip/Palate Clinic
820 Prudential Drive
Howard Bldg., Suite 405
Jacksonville, FL 32207
Phone:  (904) 633-0935

Guidestar Non-Profit Report for
Jacksonville Cleft Lip and Palate Clinic
The Jacksonville Cleft Lip/Palate Clinic at Wolfson Children's Hospital offers comprehensive services that address more than the physical, but also address social and emotional needs. Our multidisciplinary clinic is staffed by community and University of Florida surgeons and other pediatric subspecialists in coordination with the University of Florida Jacksonville and Children's Medical Services.
Mending Faces
422 Humboldt Street
Denver, Colorado 80218
Phone:  (303) 931-4377

Mending Faces provides free surgical correction for impoverished children in developing world countries inflicted with cleft lips and cleft palates, who otherwise would not have a chance for surgery.

Shriners Hospitals for Children
516 Carew St.
Springfield, MA 01104
Phone:  (413) 787-2032

Shriners Hospitals for Children® — Springfield is a 40-bed pediatric orthopaedic hospital, research and teaching center providing comprehensive medical, surgical and rehabilitative care to children with orthopaedic conditions, and cleft lip and palate.

Guidestar Non-Profit Report for
Freeman-Sheldon Research Group
Gillette’s Center for Craniofacial Services offers a comprehensive approach to treating cleft lip, cleft palate and associated symptoms. Our team of specialists include craniofacial surgeons, neurosurgeons, plastic surgeons, orthodontists, dentists and nurse practitioners. We meet with the child’s family, often before the baby leaves the hospital, to discuss treatments and feeding techniques that support proper nutrition and growth.
National Foundation for
Facial Reconstruction
333 East 30th Street, Lobby Unit
New York, NY 10016
Phone:  (212) 263-6656
Fax:  (212) 263-7534
The mission of the National Foundation for Facial Reconstruction is to enable the facially disfigured to lead productive, fulfilling lives through a program which includes patient care, medical reserach, professional training, financial and psycho-social needs and public education.
American Cleft Palate-
Craniofacial Association
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514
Phone:  (919) 933-9044
Fax:  (919) 933-9604
American Cleft Palate-Craniofacial Association (ACPA) is an international non-profit medical society of health care professionals who treat and/or perform research on birth defects of the head and face.  The members of ACPA serve an extremely important role in the management of children and adults with cleft lip, cleft palate, and craniofacial anomalies.
Dash for Smiles
PO Box 19383
Denver, CO 80219
Phone:  (720) 231-3124

Guidestar Non-Profit Report for Dash for Smiles
The mission of Dash for Smiles is to raise awareness and support for cleft lip and palate programs in the Denver Metro area.  Dash for Smiles is a registered charity with the Colorado Secretary of State and is in the process of becoming a 501(c)(3) IRS tax-exempt non-profit entity.
Official Cleft/Craniofacial
Awareness Bracelets!